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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

Transfering from Carepages.com

Hanging in there

Posted May 19, 2009 12:57pm

The Prenatal Cardiologist said that we have nothing we can do at this point
except prepare ourselves emotional. Her little heart is still
pumping away and doing everything it possibly can to survive.
However, there is a little fluid around the heart that wasn't there
before. This is a bit discerning, but as long as her aurora
valve and miral valve continue to work and the PDA stays open the
fluid should not do anything. So lets keep praying that her heart, albeit small, keeps fighting and making it happen. Unfortunately we also found out that a cardiac transplant can not be 100% taken off the table yet. This condition is so rare and so complicated that we will not know much until she is born. The doctor reassured us that between him and the surgeons, they will look at every possibility. But due to her almost non-existent aurora valve and her small miral valve, repairing her heart through the 3 surgeries may not be an option. Once again though, we will not know much until she is actually here and they can examine her a little more in depth.
Either way, we are still keeping the hope alive for the best outcome for little Ruth. Little does she know that she is so loved and she hasn't met a soul.
We will venture on and take each day, one day, one hour, one moment at a time. There is nothing more or nothing less that we can do, but pray.

Thank you all for beginning this journey with us and for keeping Ruthie in your thoughts, prayers, and heart. We, Josh, Laura and Ruthie, appreciate you all.
God Bless!

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