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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

8.27.09

Chest Closure Today

Posted Aug 27, 2009 10:25am

Ruth will have her chest closed this afternoon. It is really exciting yet nerve racking at the same time. Any time she has to be away from us and in surgery is scary. Howver we know God will guide the surgeons and that He will keep her strong. She is our fiesty little girl. All of her stats look good and she is progressing as planned. She is holding her own temp now too. We know our HLHS journey is still a long one but this far smooth sailing.

Heart Hugs from on

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