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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

16 days later, we got to hold her!

We are officially parents.

Posted Sep 3, 2009 8:56pm

Today was pretty much another quiet day. Her vent rate went down from 14 yesterday to 10 today. They are making small adjustments to get her ready to lose the breathing tube this weekend. We did have a first today. Both of us got to hold Ruthie for the very first time this afternoon. It was every bit of amazing not only for us but for Ruth as well. She was fussy and awful sassy but then her nurse handed her to me and she instantly stopped crying and feel asleep. How precious. Dad got to hold her after me. He was able to get her to wake up and she just gazed around in his arms. It was adorable. So all and all a great day. Her stats read well all day and she was pretty content. Being able to hold her was the iceing on the cake:) We feel the parent baby bond now.

Heart Hugs from on

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