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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

8.25.08

Surgery

Posted Aug 25, 2009 1:42pm

So the surgery is going great. We had another update and everything is going as planned They are able to take her off the bypass machine which means her heart is working:) We are thrilled. We are just waiting on the surgeon to come out and give us an overview of the surgery and then she will be in recovery for about an hour. We get to see our little girl soon. We can't wait. Thank you to everyone for your love, support and prayers. Miracles do happen and we have one named Ruth Elizabeth.

Heart Hugs from on

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