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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

12.21.09

Planning on the Glenn in January

Posted Dec 21, 2009 6:18pm

I just received a phone call from Dr. Goel's office. He has talked to the surgeon, Dr. Huddleson, and they are planning on doing the Glenn a month from now. So we are looking to January now surgery. We should know dates, times, etc by the end of next week.
(Sigh)
What a relief! We are able to do the Glenn! I am so happy that we are able to do the Glenn.
(Cringe)
But at the same time, it means surgery: open heart surgery at the end of January.

We are happy, yet sad. Relieved, yet worried. What an emotional ride.
I guess we always knew there was another surgery lurking around the corner, but I don't think we realized that is would be this soon. It seems like yesterday that we were bringing her home.

So please keep Ruthie and our family in your prayers. We are praying for guidance, strength, courage, wisdom, healing, understanding, patience and hope. And anything else in between.

Happy Holidays!
Merry Christmas!

Heart Hugs!
Ruth, Laura and Josh

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