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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

9.8.09

Starting to get to "normal": whatever that means.

Posted Sep 8, 2009 12:07pm

Yesterday Ruth said goodbye to her awesome CICU nurses and headed west (7 West that is). She is off of oxygen and a lot of her meds. She is starting to take some milk through a bottle and then the rest through her feeding tubes. All is going really well. We are able to hold her all the time and we are taking on the parent role. The doctors are going to discharge her tomorrow:) We are learning how to change her dressing, how to check the NG tube placement, how to feed and distribute meds. We are really excited to take her home tomorrow. It is an amazing feeling. We can't wait. We are so grateful for the love and support. Prayers are answered and clearly God works miracles. Thank you to everyone. It is your prayers that pulled Ruthie and our family through this all. Much love and thanks

Heart Hugs from on

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