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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

10.22.09

Progression

Posted Oct 22, 2009 6:11am

Once again, sorry we haven't posted in a while. Between feedings, diaper changes and doctor appointments it has been a little crazy. Howeve, things are slowing down se and doctor appointments are going well. According to the cardiologist office, Ruth is weighing in at 7 Lbs and 8.5 ozs. She is aso now 21 3/4 inches long. So she is working right along with everything. She is eating right by taking 2.5-3 ozsevery 3 hours or so. Her color is looking good and her pulse ox is anywhere between 81-86. She also has been taken off her LASIK medicine and is now on a lower dosage of her hypo- thyroid meds. She is truely in miracle form. We are so proud and amazed daily.

Currently we are working on holding our head up better and mastering tummy time. Ruth is really getting into mobiles and her car seat toy that lights up and plays music. It is so wonderful to see her interact with objects. She is also starting to understand where voices are coming from and is showing this by following sounds with her eyes. Ruthie is beginning to meet a few more family members here and there. We are phasing people in slowly so jher little imune system can handle any outside germs. With that being said we are also limiting contact by non healthy or slightly sick people. Some may call it over board but we are not risking her health for a meet and greet.

All and all Ruth is doing marvelous. We are so greatful for all the prayers and positive thinking. We truely believe that God has a plan and we are trying our best to follow this plan. Thank you for your nonstop support and prayers. Without it, we would be lost. We are still trying to wrap our heads around the next steps, but one day at a time.

Big heart hugs!
Ruthie, Josh and Laura
xoxo

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