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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

10.05.09

Its Fall!

Posted Oct 5, 2009 1:37pm

Sorry we haven't posted in a while. Everything has been going great. Ruthie is becoming a pro- bottle eater. She is now crying (every three hours or so) when she is hungry and taking anywhere from 1.5 - 2.5 oz at each feeding. We are really moving right along. She is weighing in somewhere between 6 lbs 8 oz to 6 lbs and 10oz, depending on which doctor we are at. She is now 20 inches tall and growing more and more hair each day. She is doing so well. It's amazing.
We had a few rough nights over the past week. Ruth was extremely cranky for a few nights. Last Sunday (9/27) at 2:30 am we went to the ER because she seemed to be breathing funny. After a all night ER visit and being admitted until Monday, we found out that nothing was going on. Her stats read great and her echo was fine. We were just dealing with a cranky 6 week old baby. But, no harm, no foul. We felt like we needed to know for sure that everything was okay.
We had a few more cranky nights later in the week. Nothing unbearable just a little different from the first few weeks home. But all and all we think things are straightening out and everyone is doing well.
Thanks again for all the advice and support. The staff at SLCH and our friends and family have been so compassionate and wonderful. We are truely blessed to have you in our lifes.

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