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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Monday, December 28, 2009

Another doctor's visit

Today we went to the cardiologist, Dr. Goel. Nothing too new or exciting today. Ruth's o2 stats were hanging around 74 (where they have been for a while now) and Ruth weighs the same as she did last visit(9lbs 10 oz). We are still planning on the Glenn on Jan. 27th. They only thing that Dr. Goel wants us to work on is gaining weight. So for the first time today, Ruthie ate some cereal in her bottle. She did really well with it actually. So I hope to move her to cereal (not in the bottle) by the end of the week. I am looking forward to the cereal stained clothes and floor. But it will be worth it if she starts to gain weight.
Besides going to the doctor and trying cereal, Ruth had a pretty quiet day today. It was nice to sort of catch up from the weekend with a quiet, non- active Monday. Since we had the extra day over the weekend, I was able to get my cleaning done a day early so I could enjoy playing and just hanging out with Ruth today. It was a good day.
Heart Hugs from on

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