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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

11.17.09

Catching up

Posted Nov 17, 2009 1:25pm

Well a lot has happened since our last post. Ruthie was hospitalized after a ER visit on Halloween night. Heart wise everything turned out fine. She did has a flook of nature with bacteria in blood that she cleared herself in 24 hours. The doctors were a bit confused. She was given some tamaflu since she was exposed to the swine flu. She also received anti-biotics for her blood and we were home by Wednesday November 4th.
The following week we had a few check ups. Ruth recieved some vaccines at Dr. Sitrons. Ruth will also start rsv injections soon. Dr. Sitron along with Dr. Goel think this injections will be helpful for keeping Ruth healthy. The next step was checking her thyroid by getting blood drawn. Dr. Hruz said her levels look normal and that we will continue on with one tablet a day. After Monday, we then went to Dr. Goel where Ruth had an echo. Her echo looked good and her o2 stats are still around 80. However, we were concerned with some puffiness around her eyes. Since the echo looked good Dr. Goel wanted to schedule a heart cath to check it all out and to help determine the cause of the puffiness.
So here we are, at Childrens doing pre-cath visits and testing. We come in tomorrow at 7 am to get things started. We all have mixed feelings about this cath. We are nervous about her being put under and having to go through another procedure. With any procedure comes risk. We are also excited for the cath in that we learn more about her heart and why she is puffy. We will also be able to get an estimate of when her Glen will take place. Oh, so many emotions. However, God doesn't give us more than we can handle. So we are putting our faith in Him. Please pray for Ruthie tomorrow. We will update as much as possible.

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