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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

8.30.09

Back to the tube life

Posted Aug 30, 2009 12:02pm

Ruthie is doing much better today. Her stats are back where they should be now. She is still on her vent with the breathing tube. Over night everything went fine. She is off the bp meds and her vent settings are at 30 percent which is only 9 percent more than room air. They took out her RA line and her fully cath this morning. They also put in a feeding tube so she will start on breast milk again today. We are looking forward to a pretty relaxing day.

Heart Hugs from on

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