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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

8.26.09

Day Two Recovery

Posted Aug 26, 2009 12:56pm

Last night went well for Ruthie. They increased her oxygen percent to 50 from 34 to help with her O2 stats. Otherwise they are starting to ween her down on a few meds and the ventalitor. She is breathing some on her own. This morning she was wide awake and trying to move around a bit. It was a great way to start our morning. However they want to make sure she is comfortable so they gave her some sedation meds. Right now she is napping and resting from her big day yesterday. Ruthie is doing good. She is swollen some today but that is expected after open heart surgery. Thank you to everyone for your support and prayers. Ruthie is very lucky to have so many people in her life. We would not be able to get through this without you all

Heart Hugs from on

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