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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

No More Breathing Tubes

Posted Sep 5, 2009 1:07pm

Ruthie's breathing tube came out a little before 10 am this morning. She is doing much better than last time. She has 25% oxygen going through her nose right now. She is taking a pacifer now and doing quiet well with it. We got to hold her again today for a few minutes. We are just letting her rest up now so we can hold her more later. So far so good today but we are still hesistant to be excited since last Saturday did not go as well. Hopeful and prayerful today, but every bit of proud.

Heart Hugs from on

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