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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

7.22.09

Planning out the Un-plannable

Posted Jul 22, 2009 5:53pm

We have two more doctor appointments this week.
Tomorrow we are heading to Barnes Jewish for an ultrasound to determine when we should schedule my c- section.
Then on Friday, we have a pre-natal echo so the cardiac pediatric surgeon can get a look at what all is going on inside of her special heart.
So hopefully by the end of the week we will know when the c-section will happen and what our next steps will be.

Next week we have another cardiologist appointment with our Dr. Goel from St. Johns and an OBGYN appointment with our original doctor Dr. McLaughlin.

Everyone is so wonderful and so hands on. We know God has placed us into the best and most caring hands out there. We have faith in our doctors and they have faith in our little girl.

So at this point, we are trying to plan what seems to be the un-plannable and the unthinkable.
We are taking it all in day by and day. Hoping for the best and mentally preparing ourselves for anything and everything. With God, everything is possible. We are just keeping our trust and faith in Him and we know that no matter what the outcome may be, that it is God's will and we will place our strength and courage in Him to be able to handle it.

Heart Hugs from on

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