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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

8.22.09

What happens next?!?

Posted Aug 22, 2009 9:25am

Ruthie has been put on muscle relaxers and sedated as on Thursday evening. Her o2 stats were a bit too high for her type of heart. We thought 100 percent was good but since she has a special heart she needs special numbers for those stats. The docs thought that putting her out was the best way to be in control of her breathing. She is trying to be an over acheiver and she is trying to do too much by herself. She is still doing better then expected. The docs hope to start her 3 stage surgeries early next week. They are shooting for Monday but should know today for sure. Ruth has already pulled through some crazy serious stuff but she has only just begun this journey. Thank you all for your support, prayers and advice. Clearly. God does answer prayers. We are placing our trust in Him and we know He will provide. Gods will be done. Please keep praying and thinking positive thoughts.

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