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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

9.1.09

The breathing tube dance

Posted Sep 1, 2009 2:17pm

Today Ruthie started the day with just having the vent as back up. What a victory!! However that only lasted six hours. She is now back on a low vent setting because she was having an irregular heart rate. It is just a dance: two steps forward, one step back. They gave her vitamin k (potassium) in hopes of making her heart rate stable. Since they gave it to her she has had good stars. So it's just a waiting game. She is taken breast mill very well and she is gaining weight. She is also not very swollen today. So far it's been an alright day. Please continue the constant prayers for her strength and our patience. We know she will tell us when she is ready.

Heart Hugs from on

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