About Me

My photo
On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

8.25.09 Surgery Day

Norwood Surgery

Posted Aug 25, 2009 10:20am

Well yesterday was a rougher day. She was trying too darn hard to breathe on her own, so they had to put her back on muscle relaxers. It was a bit hard to take since she was off of them for a day or two. However, we were able to give her kisses before she went back under. Last night, while we were saying our nightly prayer with Ruthie, opened her eyes to see us even though she was suppose to be sedated. It was wonderful to see her gorgeous eyes. It was as if she saying, "Mom and Dad, I am okay. Sleep well."
Over night last night went well. We got back to Children's at 6:15 am and we spent some time with her before her big surgery. About 15 minutes before they took her to surgery, she opened her eyes again (even though she was sedated). It was quite nice to be able to see her eyes one more time before she was off to surgery.
We just got updated that she is under now and that everything is going great. We should be able to hear more in about an hour.
Please keep praying for her today. She has a rough next 48 hours ahead of her. Pray for her strength and for her doctors guidance and wisdom.
We grately appreciate your support and love

Heart Hugs from on

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)