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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

8.18.09

She is here

Posted Aug 18, 2009 8:39pm

At 9:59am Ruth Elizabeth was born via c section. Upon arrival she was transported to Childrens Cath Lab. Her first surgery to create a connection between the two atriums went awesomely well. She is 5 lbs & 13 oz and 18 inches long. She has made it through the first most intense surgery and we will know more about her lungs in the next few days. She is truely a miracle. Thank God for her survival and strength. Thank you all for you prayers and support. We are definitely not out of the woods yet but we have already made it through much. We love you all. Keep the faith and keep praying.

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