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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

9.15.09

Newborn Screening

Posted Sep 15, 2009 2:30pm

Today we got a phone call from Dr. Sitron, Ruth's pediatrician, saying that her newborn screening came back with red flag. Apparently there is an issue with her thyroids. We are going into Children's for further testing with the Endocrinologist. We know that this is not near as big as HLHS, but it is still a bit concerning. According to recent studies, one in 4000 babies are born with a thyroid issue or problem. So, Ruthie is really playing her odds.
So wish us luck and please keep the prayers flowing. She is such a stong and precious little girl. We know that God will protect her and that He will give us strength to endure it all. It is just another page in the book of Ruth.

Heart Hugs from on

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