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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

8.28.09

Ten days old.

Posted Aug 28, 2009 12:47pm

Today Ruthie is ten days old. She is soon quite well and everything is moving right along. Her chest is nicely closed now and her stats have stabilized. Today they are weening her down on meds and her ventilator. She is moving and stating awake more now. They are giving her pedialite currently and they hope to give her breast milk today at noon. We are really excited especially since we have a lot on reserve. As long as she continues to do well they want to take her off the vent tomorrow morning which means she will start crying soon. We never thought we would be so happy to hear a crying baby but we can't wait. They hope to have the line out of her heart early next week which means holding her is getting close. We are extremely proud of her progress and thankful to God and our supporters. How blessed are we and is Ruthie.

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