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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

9.2.09

Pretty quiet

Posted Sep 2, 2009 9:11am

Ruthie is staying pretty quiet. She is doing great with everything this world has thrown at her this far. She is still receiving some potassium periodically. Today we are working on weening down the vent slowly. They are taking small baby steps to help her deal with the adjustment. Dr. Huddleson will be placing a cut down PIC line in Ruthie's arm today as well. The PIC line gives central access to her veins and is a more long term access for meds and so forth. The cut down PIC is inserted through surgery and sowen into a good blood vessel. It is not an extensive surgery but a surgery none the less. Besides the PIC line surgery, we are looking forward to a relaxing day. We are really amazed at how much she handles. We know that it is purely through God's help and guidance that Ruthie continues to be so strong. We are truely blessed.

Heart Hugs from on

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