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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Monday, May 17, 2010

Quick Update!

I am working on a big update including pictures over the past 9 months. Tomorrow we celebrate her 9 month birthday!! Where has the time gone? Oh, that's right... at Childrens! Ah, oh well... No matter where we are spending time with Ruthie, we know we are blessed.

So quick update...
Ruthie is doing great. She is officially in 7 West now (step down unit). She has made herself quite comfy there and hasn't had a roommate since last Monday when she made the BIG move.

She is working hard with PT, OT, and speech therapies. She is practicing sitting up and rolling over. She is getting pretty good at laying on her side and playing. We are also working on feeding her once a day, by mouth. She has taken applesauce and pears. I am not sure if she liked either, but she is getting better at it.
Today, they replaced her NJ tube because once again it had become a NG tube.

Sorry for not posting. Between the move, me working 4-5 days a week and the wedding, I have been pretty swamped. But, alas it is all going well.
I hope to post the BIG fun picture update Wednesday since I work 12-close tomorrow. I wish I could spend more of her birthday with her. Maybe, I will spend the night!?!? We will have to see. I think she could use a slumber party when I get off at 11!

Thank you for the constant prayers. God has a plan and we will pray and trust in Him.

Oh and our friends went home last week. So good luck with your new adventures... Ben, Nolinn, and Audrey! We are still praying for you all! Miss your faces around the hospital!

HUGS!
Laura
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