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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Saturday, December 26, 2009

9.23.09

We are negative which is a positive.

Posted Sep 23, 2009 3:46pm

On Monday, Ruthie went to Childrens to complete a sweat test. During this test they put sensorson her leg and then stimulated those sensors to encourage her body to sweat. When checking for cystic fibrosis, you colllect sweat to see what the salt levels tell you. Too high and you have CF. After they stimulated her leg they then placed gauze and plastic wrap around the area to collect the sweat. After 30 minutes, we re- entered the room and the gauze was sent to the lab. Dr. Sitron called a few hours later to inform us that yes she still has a heart defect and yes she still has hypothyroidism but no she does not have CF. What a relief.
Later that day, Ruths cardiologist Dr. Goel told us that since she is eating well we can remove her Ng tube. So now she is eating all on her own and honestly doing great. It is so nice to be tube free.
Thank you for all the prayers. God clearly answers his people.

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