About Me

My photo
On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Monday, January 11, 2010

We must be getting closer

She is sleeping more and playing less... We must be getting closer.
She is staying bluer longer after a nice cry... We must be getting closer.
She is taking less at each eating and then eating more often.... We must be getting closer.

Each day we are getting closer to the inevitable....Surgery!

We know that with this surgery, Ruthie's heart function will improve. We know that with this surgery, her heart will not have to work as hard. We know that with surgery, that Ruthie's heart will be getting ready for the next surgery. We know that surgery is the best and right thing.
Even though we know what good things this surgery can bring, we of course are nervous. We are nervous about her going under. We are nervous about being away from our little girl. We are nervous about the surgery itself. We are nervous about the recovery. Just nervous.

In order to calm my own fears and of course to feel more prepared, I have been researching about the Bi-directional Glenn. I want to know anything and everything about this surgery. I know it seems silly to continually beat this information into my head, but I feel as though the more I know, the more I feel comfortable with sending Ruthie off for another surgery.


So, tomorrow we go in for a cardiologist appointment. I am sure he will do a whole work up on Ruth since we probably won't see Dr. Goel until after surgery. We are planning on a good 2 hours spent at the doctors and an echo. I know this sounds silly, but I am excited to go in and see he O2 stats and her weight. I really hope everything is going to Dr. Goel's plans.

Expect an update tomorrow afternoon or so about her appointment.

Until then, we will just keep praying, hoping and trying to plan as best we can:0

Heart hugs!

Laura

2 comments:

  1. I am a heart mother too. My son will be having a gleen shunt in May or June. I got your blog from another one. I will be praying for your daughter and your family. My son's blog is http://adampeanut.blogspot.com

    ReplyDelete
  2. I am praying for Ruthie everyday. I am also praying for you guys and strength to get you through this step. I hope all goes well with her Echo.

    ReplyDelete