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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Tuesday, January 5, 2010

CHD Awareness Week!

Okay, I know I have posted a lot today, but I wanted to put this post up to get people going. I already sent a letter to my governor in order to start working on a proclamation for CHD Week. I just want to spread awareness in hopes that funding and research will follow. So, if you get a chance and your state has not already declared Feb. 7th- Feb 14th CHD week, than please PLEASE jump on this site and get on it. Let's start the fight against CHD. No family should go through this and with enough research and funding, one day that dream will be realized.

Thank you!


http://tchin.org/aware/sampleproc.htm
Heart Hugs from on

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