On May 4, 2009, Josh and I
discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart
syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought
into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to
Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood.
Unfortunately, Ruthie was not
able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life.
We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl.
Now that we have two children, we are learning the about being a heart FAMILY.
As I was reading your last post, I couldn't hold back the tears. Oh, my gosh we will be praying that Ruthie will be clear for the Glenn, and that it's done at the perfect time. I can't imagine how you felt having that conversation on the phone with Dr. Goel. I understand the fear of that conversation, but to have it...my heart breaks for you!
You ALL will be in our prayers...extra prayers...that the doctors make the best decision for Ruthie. Whatever the decision is, we pray it's the best one for her.
If there is ANYTHING I can do, you just let me know. If you want to talk, cry, scream, laugh...whatever, I'm here.
I love seeing that precious girl's face!
ReplyDeleteAs I was reading your last post, I couldn't hold back the tears. Oh, my gosh we will be praying that Ruthie will be clear for the Glenn, and that it's done at the perfect time. I can't imagine how you felt having that conversation on the phone with Dr. Goel. I understand the fear of that conversation, but to have it...my heart breaks for you!
You ALL will be in our prayers...extra prayers...that the doctors make the best decision for Ruthie. Whatever the decision is, we pray it's the best one for her.
If there is ANYTHING I can do, you just let me know. If you want to talk, cry, scream, laugh...whatever, I'm here.
Lots of BIG heart hugs and PRAYERS!!
Shannon