About Me

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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Wednesday, January 27, 2010

The CICU

Ruthie is done with the lung biopsie. The whole procedure went well and we hope to have results tomorrow morning. She is currently in the CICU and resting. Her blood gas is not where we want it to be so they have decided to keep her breathing tube in over night. She needs the rest and they don't want to push her yet, especially since she has "gone under" three times this past week. I just remember what my body went through after the c section and I wasn't fully sedated. I can't imagine what her little body is feeling and three full sedations. We hope to remove the tube tomorrow but it all depends on Ruthie and her condition.
Please pray for Ruthie. I am sure this CICU visit will be short, but at the same time I can never be sure. So it is a safe but scary place. I mean it's intensive care. So pray pray pray.

I hope to post about our past week sometime soon, but my heart is not into my blog right now. I appreciate, correction WE appreciate all your support and prayers. I also know that you like to get updates just like I like updates on my other chd babies. However, it is a boy rough right now. So for the time being this is all I got.
I am trying to post at least the basics so you are not left wondering.

God is in control, like He had been from day one. It is just hard to trust and just live sometimes. As any parent knows, watching your child struggle is almost unbearable at times. We have faith though and we believe in our little girl. She is so strong and God is so good.

Please pray for our other heart babies and their families. We all share in each others ups and downs. Please pray for their contineous strength and hope.

Heart hugs
Heart Hugs from on

2 comments:

  1. KathyJanuary 27, 2010 at 6:20 PM

    I found your site through the Carter's blog. I wanted you to know that my family will be praying for your family. Our heart babies certianly have a way of bringing us to God like no one else can!
    Kathy Wimberly
    www.lilwim.blogspot.com

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  2. Kelly PotterJanuary 28, 2010 at 5:26 AM

    Found this site through the Carter's blog too. Just wanted to let you know that our daughter made it through the 2nd stage (she HAD HLHS too) and then got the transplant that she so desperately needed at 8 months old. She is now 4 and in dance class and preschool!
    Praying for you all! Good luck with all of the testing and I hope that she makes it on the list very soon. If you want to talk about the trasnplant process or have any questions, I would love to help!
    Reagan's mom
    fourpotters@sc.rr.com

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