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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Tuesday, January 26, 2010

Not a detailed update, but this is all I can do right now

We are slowly getting closer to results. We are checking off boxes left and right. Tomorrow we have the lung biopsies. Pray for Ruth during the surgery, itself, and now good results. This is a big determing factor of weather she can be placed on the heart transplant list. Pray. Pray. Pray
Heart Hugs from on

5 comments:

  1. ShannonJanuary 26, 2010 at 7:19 PM

    We're praying for Ruthie AND you and Josh!!

    Big, big hugs and lots of PRAYERS!
    Shannon

    ReplyDelete
  2. Mary MatsunoJanuary 27, 2010 at 9:02 AM

    Just joined your blog via Derrick Carter's. Ruthie and you guys are now on my prayer list and my "favorites" list. Praying that the lung biopsy goes well.
    Mary Matsuno
    Los Angeles, CA

    ReplyDelete
  3. Kathy BakerJanuary 27, 2010 at 11:33 AM

    Laura,

    I am praying everyday for Ruthie. I can't imagine what you are going through right now but know that our family is constantly thinking of yours and sending up prayers.

    ReplyDelete
  4. SundieJanuary 27, 2010 at 1:28 PM

    Prayers for your sweet Ruthie!!! Our family will be praying often and sending you as much positive energy as we can!
    Praying with all our might,
    Sundie
    http://sydniesweetheart.blogspot.com

    ReplyDelete
  5. Wodzisz FamilyJanuary 27, 2010 at 1:35 PM

    We are praying endlessly for Ruthie and for your whole family.

    ReplyDelete

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