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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Monday, February 7, 2011

Awareness

Awareness... understanding of, knowledge of, recognition of...
congenial heart defects

Today kicks of 2011's CHD Awareness Week.
I am aware that many of you know a little something about CHDs.
Whether you have gone in depth and gained knowledge of
how a complex little heart works or you have an understanding of
what a special heart brings to a family,
you all have given recognition of
CHDs.

I just want to say THANK YOU!
Thank you for sharing in our awareness of CHD.
Thank you for praying for our special hearted little girl and all of her heart friends.
Thank you for sharing her story and creating awareness.

So even though this sounds a bit odd,

HAPPY CHD AWARENESS WEEK!

Celebrate with us the joys of a different heart and lifestyle.



Remember the struggles and how our hearts ached.

This picture was taken 2/6/10. 3 days after being listed for a heart transplant.

Rejoice in our victories.

From blue hands...

To fabulous pink hands after tranplant


Last of all please continue to pray.
Pray for understanding of, knowledge of, recognition of special hearts and special families.


Ruthie thanks you from the very bottom of her brand new heart!

Happy CHD Awareness Week!






Heart Hugs from on

1 comment:

  1. ShannonFebruary 7, 2011 at 2:44 PM

    Happy CHD Awareness Week!

    It's so good to see that sweet little Ruthie's smiling face! :)

    ReplyDelete

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