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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Thursday, January 13, 2011

Pictures tell a better story

Ruth's tree

Ruthie was nominated by the St. Louis Childrens' Foundation to receive a "Donor Tree". Through this foundation, we met Noell Lopez and her boyfriend Phil. The two of them worked diligently to create this amazing tree. After the event Ruth's tree was delivered to our home.


Ruth's Christmas

Santa treated Ruthie like a princess this year.






Ruthie had a BLAST opening her new presents...






Or at least playing with the wrapping paper.
Silly girl!






Besides enjoying the holidays, Ruthie has been very busy.
Busy playing. Busy eating!
THAT"S RIGHT, EATING BY MOUTH!
She is up to a jar of baby food a day. We are still, of course, working on the drinking concept.
If it's bathwater, its fine; but give her milk in a cup and NO WAY!
(Maybe I sense a little bit of a 2 year old attitude coming on. That should be fun!)

Busy visiting ,our home away from home, Childrens:

*** Biopsy on Jan. 4th and NO SIGN OF REJECTION!
*** NEW! Speech therapy and a dietitian visit once a week
*** Pulmonary visit- Off the vest!

BUSY BEING A CHILD!


So busy, that Ruthie is wore out!




We are having a great time at home. We are all happy! We are all healthy!

We are looking forward to 2011! We cannot wait to get out and LIVE!

Heart Hugs from on

1 comment:

  1. ShannonJanuary 13, 2011 at 1:59 PM

    I'm so glad everyone is doing well! Lots of prayers for a happy, healthy 2011!!

    ReplyDelete

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