About Me

My photo
On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Wednesday, February 16, 2011

Photo Shoot

My cousin,Becca, is an amazing photographer.
She took all of our wedding photos and she has taken many of Ruthie
When I asked her to snap some photos of Ruthie for Heart Month,
she did not hesitate to say, "YES!"

So here are a few of the 200 photos Becca took.

Standing with some help




Giggling... outside!



Playing with Mommy's hands



Loving my family


and my family loving on me.


We love our big girl.

Speaking of our BIG girl...
GREAT clinic day!
Ruthie is weighing in at 21lbs and 9 oz. (Up 13 oz since Jan 4th)
She is now 30 inches tall (That's right, another 3 inches taller since Jan 4th).
Her lungs and heart both look good:)
Dr. Cantar was pretty pleased with her progress.

Thank you so much for the prayers for our Clinic Day.
We felt them all day long!
We are SLCH transplant team free for another 6 weeks now! Whew!
We will have a biopsy/ heart cath and a pulmonary profusion test done in April.

Until then, Ruthie will do what she does best:
continue to laugh and be a happy "normal" 1 1/2 year old!



Heart Hugs from on

1 comment:

  1. Heather and AdamFebruary 21, 2011 at 8:01 PM

    Ruthie is such a doll! I am so glad I got the opportunity to meet her (and you) at Christmas time! She is such an inspiration.

    ReplyDelete

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