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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Tuesday, August 10, 2010

We have a plan!

We have decided on a plan!

Ruthie is going to stay at Children's until her biopsy, which is scheduled August 17th (first case... 7:30am). She will undergo the cath/biopsy and then recover back in 7 West. Depending on how she does after the cath, she may go home that night or early the next morning. Either way, the plan is to have her home on or before her 1st birthday on August 18th!


So, 7/8 days and counting!!

Ruthie is getting pretty excited!



She has been working really hard all around.
She is working on sitting up.
She is working on eating some things by mouth.

She is even practicing covering herself from the sunshine..........................
(that she hasn't seen in months!)



She is slowly coming right along.

Please keep Ruthie in your prayers as we work on a transition from Hospital to Home.
I know she will do it, but it may take her a while!

Thank you so much for the prayers!

HUGS!
Heart Hugs from on

3 comments:

  1. JennyAugust 10, 2010 at 5:33 PM

    Great news! I'm so glad to read that you have a plan that you are comfortable with. How wonderful to be home for her first birthday! :) We will keep you all in our prayers!

    ReplyDelete
  2. Faith M.August 10, 2010 at 8:40 PM

    I know that you are thrilled to have a plan and a date to be home. I can't wait to see pictures of her smiling and being her cute little self at home where she belongs. We are praying!

    ReplyDelete
  3. ShannonAugust 10, 2010 at 10:16 PM

    Tears!!!

    I'm so glad there's a plan for your family to be back together again...and the timing! How perfect is that?! What an incredible first birthday present for such an incredible little girl!!

    I'm so, so happy for you guys! (But that doesn't mean you get to stop updating us! :)

    Big BIG heart hugs and prayers!

    ReplyDelete

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