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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Wednesday, August 11, 2010

Prayer Request

Things have changed slightly!

Ruthie's right lung collasped a little early this morning. She is currently in the CICU and doing well. She is on 10 L of o2. She is receiving PD every two hours to help keep her lung as open as possible.

Tomorrow morning, Ruth is going in for a biopsy and to re-inflate her lung. This biopsy will take the place of the scheduled biopsy on August 17th. They are honestly not too concerned about her heart right now. It just makes sense to intubate her and put her out for everything at once.

We are still planning on leaving early next week. Dr. C feels that we will be ready after we remove her broviac, do a biopsy and re-inflate her lungs.

So please keep Ruthie in your prayers over the next few days.

Hugs!
Praise be to God!

Laura

3 comments:

  1. Oh Ruthie! You are just trying to make your mama and daddy extra nervous about finally getting you out of there, aren't you?

    We're saying lots of prayers!!!
    The Carters

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  2. She really does know how to throw a curve ball huh? Adding some extra prayers for all of you and still praying like crazy that she is home on her birthday!

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  3. Ruthie just showing how tough she is one last time before she heads home :) Praying for her and for your family to be heading home soon and a great biopsy report!

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