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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Friday, April 23, 2010

Suprise!! We are going to the cath lab!

I will do a major recap of the past two days later today. As of right now, Ruthie is in the cath lab for three purposes.
1. A diognostic cath
2. A central line
3. NJ replacement.
They are checking the ins and outs of her heart and her Sano shunt. We need to know exactly what is going on and a cath is the best way to accomplish that task.

Great news! Two babies received their heart over the past 24 hours in our unit!!! Amen! Amen! God is good! Please keep them and Ruthie in your prayers.

It's in Gods hands.

Amen!
Heart Hugs from on

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