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On May 4, 2009, Josh and I discovered that our soon to be little girl, due on August 25th, would be born with a CHD known as HLHS (hypo-plastic left heart syndrome). Upon hearing "something is wrong with your baby's heart" our lives changed completely. Our little Ruth Elizabeth was brought into this world on August 18, 2009. She was delivered via c-section and rushed immediately from Barnes to Childrens' Hospital for a cardiac cath intervention. Her arial septum was reopened and a week later, Ruthie underwent her first open heart surgery, the Norwood. Unfortunately, Ruthie was not able to survive on her Norwood heart and the Glenn procedure would not work for her. Ruthie was placed on the heart transplant list Feb.3, 2010. After waiting in SLCH, Ruthie received a new heart on July 5, 2010. We are so humbly blessed to receive this gift of life. We now are on the road to recovery. We have had our ups and downs. We have become SLCH regulars due to countless hospital stays and ER visits. We are learning how to manage life outside of SLCH and with another little girl. Now that we have two children, we are learning the about being a heart FAMILY.

Wednesday, February 3, 2010

More to come later!!

We have had an eventful day , which I will discuss later. For right now I just wanted to share our excitement with our heart community. RUTH IS ON THE TRANSPLANT LIST!!!!!!!!!

More info later! Thanks for the prayers and support!!!!

3 comments:

  1. Transplant List--Super! I've been following your blog. My prayers are with Ruth and you guys.
    Love,
    Mary Matsuno

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  2. That is so great news! I will continue to pray for little Ruth and your family.

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